Gordon Aikman in heartfelt plea on MND cure search

IN A heartfelt appeal to politicians in the run-up to next month’s general election, motor neurone disease campaigner Gordon Aikman is to launch a plan he believes will help find a cure for the disease that is killing him.
Aikman wants the party leaders to double funding and efforts to find cure for MND. Picture: Ian GeorgesonAikman wants the party leaders to double funding and efforts to find cure for MND. Picture: Ian Georgeson
Aikman wants the party leaders to double funding and efforts to find cure for MND. Picture: Ian Georgeson

Mr Aikman will issue a “direct and personal plea” to the main party leaders to intensify their efforts to find a cure for the neurodegenerative condition and to double MND research funding.

Pointing out this is likely to be his last general election, the 30-year-old will state that “It’ll be too late for me”, but that with the “political will” a breakthrough could be made that to save the lives of this diagnosed with MND in future.

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The late actor David Niven and former England football manager Don Revie are among well-known victims of the condition, which attacks the nervous system.

Mr Aikman will claim that world-class researchers in Scotland’s universities, the “unitary NHS care system” and a population size that is a “large enough sample to be globally relevant and yet small enough to be traceable” means that a cure for MND is achievable.

Mr Aikman, the former head of research for the anti-independence Better Together campaign, will issue the challenge to the main party leaders in a speech to the Edinburgh International Science Festival today.

“Scotland is the ideal place to drive both the discovery science, as well as deliver a stratified medical approach for individual patient care and ultimately better-focused clinical trials”, he is expected to say.

David Cameron, Ed Miliband, Nicola Sturgeon and Nick Clegg will all be asked to sign-up to the plan to pursue a cure, including a commitment to double the number of MND specialist nurses and the development and testing of new treatments.

Mr Aikman will say: “David, Ed, Nick and Nicola – the ball is in your court. This is it. This is our chance. I won’t be here next time round.

“Half of people with MND die within 14 months of diagnosis. The odds are stacked against me. This is likely to be the last general election I will see.

“So with just weeks until we go to the polls I am making a direct and personal plea to all the party leaders. My plea is simple and is this: double MND research funding.”

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Mr Aikman will suggest that Scotland can lead the way in developing a global cure for the disease, stating that “it’s time to create a world free from MND”.

He will call on political leaders to “market Scotland to the world as the go-to hub for MND clinical trials”, by encouraging drug companies and researchers to make the most of Scotland’s strong scientific sector.

A key part of Mr Aikman’s plan would see Scotland “deepen the information we gather about MND patients” to make it easier to deliver care.

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