Scarlett Moore had a traumatic arrival to the world in March 2016, having been starved of oxygen due to complications during birth.
After two long years of investigations, Scarlett was diagnosed with quadriplegic cerebral palsy and global development relay. She has now received a further diagnosis of epilepsy and has undergone extensive tests at Edinburgh’s Sick Kids Hospital.
“In the back of our minds we already thought she had it,” said Mrs Moore “But until you get the diagnosis you are constantly searching. It was a relief in a way because we could start looking at things that would benefit her.”
Everyday, Mr and Mrs Moore dedicate two hours to advanced biomechanical rehabilitation (ABR), a therapy that rebuilds the strength, structure and function of Scarlett’s body.
“We do two hours of gentle exercises each day using different equipment like small weighted balls and bits of foam, applying pressure to different parts of her body,” said Mrs Moore who gave up work to care for her daughter full time.
Before starting therapy Scarlett’s hands were constantly balled into tight fists but she has since learned to open and close her hands and can freely reach for and touch objects.
The diligent parents are now working on head control and hope that their daughter will be able to lift and support her own head in the future.
But Mrs Moore said they “still have a long way to go” and Scarlett's progress relies heavily on ABR therapy.
To carry out this treatment effectively Scarlett’s parents need to consistently monitor and change Scarlett’s exercises and require specialist training three times a year.
As the NHS only provides physiotherapy for children with cerebral palsy the family has had to self-fund this pricey treatment, constantly fundraising to make ends meet.
“I never thought I would have to ask strangers to help my child” said Mrs Moore who has been running a Just Giving page to raise cash for years and has carried out numerous bake sales and game nights to fund her child’s care.
Exhausted from the constant need to raise extra cash alongside caring for her daughter full time the diligent mum is still determined to do whatever she must to give her daughter the best future possible.
Blown away by the support they have continued to receive from family, friends and even strangers during lockdown Mrs Moore, of Galashiels, said this shows "just how kind people are."
Looking towards the future the mother-of-two said: “I think Scarlett will always need therapy, we will just have to keep fundraising.”
Adding: “All we want is for her to be happy and enjoy life. We don't want her to be in any pain. She might never walk or talk but we can tell when she's happy.
“She is a happy cheeky little girl, she loves laughing, rough and tumble. She loves a carry on really."
To donate to Scarlett Moore’s therapy fund CLICK HERE