Neon can have radiotherapy treatment, High Court judge rules

Sally Roberts, mother of Neon, arrives at the High Court
Sally Roberts, mother of Neon, arrives at the High Court
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A seven-year-old boy can have radiotherapy treatment, following surgery on a brain tumour, against his mother’s wishes, a High Court judge has ruled.

Sally Roberts, 37, a New Zealander who lives in Brighton, East Sussex, said she feared that radiotherapy would cause long-term harm to her son Neon, and argued that “credible” alternative treatment was available.

Specialists treating Neon accepted that there were side-effects to radiotherapy but said that without the treatment the youngster could die within a few months.

Mr Justice Bodey, who heard evidence at a hearing in the Family Division of the High Court in London, said radiotherapy treatment could start.

“The mother has been through a terrible time. This sort of thing is every parent’s nightmare,” said the judge.

“But I am worried that her judgment has gone awry on the question of the seriousness of the threat which Neon faces.

“The alternative treatments put forward were complementary and alternative medicine. Nothing put forward has undergone rigorous clinical trials.

“I find it difficult to see that doctors would withhold alternative treatment that would improve survival.”

Ms Roberts had told the court she was not a “bonkers mother”.

She said she feared that radiotherapy would reduce Neon’s intelligence quotient (IQ), shorten his life, put him at risk of having strokes and make him infertile.

And she told the judge that she wanted medics to consider alternatives.

Neon’s father Ben, who lives in London and is separated from Ms Roberts, had agreed to radiotherapy but was “apprehensive”, the court heard.

A specialist treating Neon had told the court that a team of experts involved in Neon’s care had agreed that radiotherapy treatment was in the boy’s best interests.

He said doctors wanted to start radiotherapy treatment as soon as possible.

And he suggested that Neon could lead a “good life” after receiving radiotherapy treatment.

Lawyers representing doctors involved in Neon’s care told the judge that Ms Roberts was proposing “experimental therapies”, which were “unproven”, as alternatives to radiotherapy.

Mr Justice Bodey had said he had to balance risk against benefit in deciding whether to allow doctors to use radiotherapy treatment.

“It is a balance between the disadvantages of radiotherapy and the improved prospects of living,” he had told lawyers.

“You can only suffer these detriments to your life if you are alive.”

The judge said today that a specialist treating Neon had given “most impressive” evidence and was at the “cutting edge”.

He praised the doctor for his “most impressive dedication” to Neon’s case.

The judge said Neon is being treated by a team of experts at a hospital which is a centre of excellence.

Ms Roberts declined to comment.

Mr Roberts’ solicitor, Gwen Williams, said: “Mr Roberts is relieved that the judge has been able to make a final ruling on Neon’s treatment.

“He now hopes that Neon can be allowed to recover from his latest operation and start the radiotherapy and chemotherapy that the doctors have outlined without any further delay.”

Mr Roberts said he hoped Neon would be allowed to deal with “ongoing medical issues” without further publicity.

Neon had surgery in October after being diagnosed with a brain tumour, but the judge ruled he should have further surgery after MRI scans showed a tumour nodule where the original operation was performed.

The case first hit the headlines in early December when Ms Roberts – then living in Tiverton, Devon – disappeared with Neon. Both were found safe after a judge ordered a search.

Ms Roberts apologised for vanishing and told Mr Justice Bodey that she had panicked, she wanted further medical opinions from doctors in Russia, Germany and the United States, and asked for the surgery on her son to be postponed.

Mr Justice Bodey said it would be remiss of the court to prevent a recurrence of her and her son’s disappearance