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Controversial autism guru offers Scots a £7,000 'cure'



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Published Date: 07 September 2008
AN AMERICAN medical guru who charges thousands of pounds to "cure" autistic children is heading to Scotland amid a storm of controversy.
Raun Kaufman insists he "fully recovered" from the condition and can show others how to do the same.

But medical experts and autism groups have accused Kaufman's organisation of misleading parents, claiming there is no scientific evidence.

A n
umber of specialists – including one of Scotland's most senior consultants – have urged families to think long and hard before signing up for the Son-Rise programme, which can cost more than £7,000.

More than 50,000 people in Scotland are thought to have some form of autism, typically leaving them with difficulty in communicating and interacting with others.

Autism is a neurological disorder and most scientists believe there can, therefore, be no "cure". The symptoms of the condition are usually addressed through education in specialised classes with small numbers of pupils. With years of expert support, youngsters can make significant progress and go on to gain qualifications and hold down jobs.

Kaufman, who runs the Autism Treatment Centre of America, based in Massachusetts, will give a lecture at Heriot-Watt University, Edinburgh, on October 5 entitled 'An Autism Solution' and is also due to speak in London, Manchester and Birmingham.

UK tour coordinator Rachel Jacobson predicted that a capacity audience of 200 people would attend the free Edinburgh talk.

People attending the lecture who are interested in learning more will be offered a consultation session with a Son-Rise counsellor. They will then be given official books on the programme including A Miracle To Believe In and Happiness Is A Choice. If they are still interested they can then sign-up to begin one of the intensive Son-Rise programmes.

Jacobson said Kaufman's speech would "debunk the myth" that autism is incurable.

"We have seen full recovery in many, many people since then, but it is challenging to give an exact number."

The Son-Rise scheme encourages parents to mimic their child's behaviour in order to increase trust.

Parents are also advised to create a distraction-free "playroom" in their home with toys and food being kept out of reach in order to compel youngsters to communicate.

Dr Iain McClure compiled NHS Scotland's guidelines on Autism Spectrum Disorder (ASD) last year and examined a variety of outside treatment programmes.

He said: "There was no evidence found for a cure by any method.

"As far as mainstream clinicians and researchers who work with autism are aware, autism is not a condition that one recovers from."

McClure, a consultant psychiatrist with NHS Tayside, urged parents to consult the Scottish Intercollegiate Guideline Network website before investing in any treatment.

"For every parent that Son–Rise presents as being convinced their child has been 'cured' or improved, there will be an equal, if not greater, group who will be dissatisfied."

Dr Richard Mills, director of independent charity Research Autism, also urged caution.

He said: "Anecdotal reports of recovery are not evidence. There have been no independently conducted, peer-reviewed scientific trials of the Son-Rise method so we cannot recommend it to parents."

And Carol Povey, head of adult services with the National Autistic Society, said: "I have spoken to Raun Kaufman and told him there is no cure for autism. To claim otherwise is to mislead families who are extremely vulnerable."

Dr Katie Cebula, of Edinburgh University, has conducted research into the impact of Son–Rise on families.

The committee member of the Scottish Autism Research Group said: "Around half of those involved reported that it caused some difficulties for their family life.

"Nearly all reported some financial impact."

Cebula said there were also anecdotal reports from parents who found the programme helpful, but said further independent evaluation was needed to get a complete picture.





The full article contains 642 words and appears in Scotland On Sunday newspaper.
Page 1 of 1

  • Last Updated: 06 September 2008 7:12 PM
  • Source: Scotland On Sunday
  • Location: Scotland
 
1

Col. Blimp­IV*,

07/09/2008 01:06:57
Most kids with autism will sooner or later end up in an "autism unit"-jail without the bars and itchy blankets, run by private contractors who will relieve the state of £7,000 or more every couple of months.

At least this alleged charlatan offers some hope so is cheap at twice the price.
2

Charles Linskaill,

Edinburgh 07/09/2008 01:25:53

Give the man a 'break', afterall he has to earn a living! :)

And lets,..'face-it' you would be mad to believe all his,..

.....'Baloney'

But 'God' loves a tryer, does he/she not,?
3

Birnamo,

Edinburgh 07/09/2008 06:08:29
American 'faith healers' are something else. Not far removed from celebrities who sell there wares because there are mugs willing to buy.
4

mrroy,

07/09/2008 07:32:30
Google and find
"Effectiveness

Although Son-Rise had never participated in published formal scientific evaluations of effectiveness,[11] clinical trials and a retrospective long-term study of program participants began in 2008.[4] Questions have been raised whether Raun Kaufman was actually autistic before being treated.[12] There are no documented normalizations with older children, and it may be that success "depends on a certain level of intellectual potential".[13] Some professionals have questioned the emphasis placed on eye contact and its potential aversiveness for some children.[11]

The consensus within the medical community is that there is no cure for autism and only a very few treatments have empirical evidence for improvements in symptoms.[12][14] A 2003 study found that involvement with the Son-Rise Program led to more drawbacks than benefits for the involved families over time, although family stress levels did not rise in all cases.[2] A 2006 study found that the Son-Rise Program is not always implemented as it is typically described in the literature, which suggests it will be difficult to evaluate its efficacy.[3]"

Wikipedia
5

agatha,

07/09/2008 09:37:48
I dpn't know why I'm dignifying either post with a reply but ColBlimp, thankfully for us parents of a child on the Autistic Spectrum you show a dreadful ignorance of the condition. And Charles if I have understood some of your other rantings, I think you are expecting a child? I hope for your (and more importantly your wife's)sake it has no imperfections. If it does you will come to understand how desperate people can feel and would not be as sympathetic to someone "trying to earn a living" at the expense of others.
6

somerferg,

perth 07/09/2008 10:59:08

Well said Agatha - yes those particular commentors are renouned for their stupid comments and clearly show NO undersatanding about this complex and difficult issue.
7

Charles Linskaill,

Edinburgh 07/09/2008 12:27:11

#5/#6,

Well if you both want to believe in a "autism guru" I hope your £7,000 is well spent, but I will keep my £7,000 and seek tried and tested methods.

I think most people with a modicum of intelligence will see your posts are a childish attempt to do me discredit.

As for the subject on "autistic children" I would say,...

"Don't tell your Granny how to Suck Eggs" (a saying)

I can beat you both 'hands down' on any children's health issues, one would be wise to think before one speaks, if one does not know the qualifications and circumstances of who they are attempting to mock!
8

zeno,

www.thinkhumanism.com 07/09/2008 12:44:40
Thanks to mrroy for some good sceptical information. It says it all.
9

print the legend,

07/09/2008 14:22:22
Charles,
No-one needs to mock you, the facile and churlish tone of your comments does that job just fine.
You have managed to upset people who have to deal with the effects of autism with your cheap shots and then you attempt to cop out of the hurt you have caused by some vague suggestion of personal involvement/knowledge of autism.
Even if that is true it does not give you the right to have a laugh ( or whatever you are doing ) at an issue that is heartbreaking for those unlucky enough to have to live with it.
10

Charles Linskaill,

Edinburgh 07/09/2008 14:46:20

And the thick get thicker, maybe one should learn to read without acting like some stoneage mob on a witch hunt.

In noway was I mocking autism, one was making comment on the "guru"
11

Matt there,

somewhere 07/09/2008 19:12:23
"Hello. I am a doctor. There is no treatment for autism. Well, yes, but we still expect you to put your child through our programmes of non-treatment, which pays us all a nice, fat salary."

Sorry. but who are the charlatans, exactly?
12

Gabriel,

edinburgh 08/09/2008 13:33:29
My sister in law cured her son from autism using this Son-Rise scheme.
13

WillsDad,

Essex 07/11/2008 23:26:03
For several reasons I was skepical of Son-Rise. But when it comes to autism GPs can offer nothing, scientists very little. However, we tried Son-Rise, and immediatley my 1yr old responded. 10 months later he is transformed. Of those few parents I've encountered who have tried Son-Rise, none regretted it. Just because Son-Rise has not been scientifically proven is not a reason not to try it. I don't know why it works, but for my son it has. Besides, when it comes to knowledge, science knows very little.
Where does £7000 come from? I read about son-rise and tried it - got the best reaction from my son for months - for free. My wife then attended the start up on London. Thanks to Cauldwell, cost us (and most people) about £300. Very American, overtones of cultiness - bit uncomfortable. Then, cleared out a bedroom, bought a large mirror £130, shelving £12/£15. For £445 my son has gone from not recognising that his parents or anyone else exists to wanting to be picked up for a cuddle (and much more besides) within months. If your child is autistic, I would urge you to give it a go along with other scientifically unproven interventions such as diet, probiotics etc. Ignore the rants and uninformed, selective journalism. Autism interventions have been pioneered by parents and it is to them you should listen.

 

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